Whatever happened to just being happy?

For those of you who have followed my blog due to endometriosis connections, I am sure you will understand the following blog post, for those of you who have not been affected by endo, I hope you won't see this post as a simple "moan" or "attack", it is simply a truthful expression of how I feel, right now.

These past few weeks have been tough on both me and Tim, and I cannot ever remember crying so much for so long. This past year has really taken it out of me and I feel ready to break, in fact I think I already have broken a little bit, based on the amount of tears that have spilled recently. And these aren't just my own, for poor Tim has had to try and console me, knowing that there was nothing he could really do to make things better. I am battling a "invisible condition" that even I forget is there making me feel so rubbish sometimes... sometimes I forget and think it is all my fault, that if only I could just pull myself together things wouldn't be so bad.

It all started about a month ago when suddenly my urge to have children turned up a gear. A friend at work told me she had dreamt I was pregnant, and then I dreamt we had a baby, two nights running... except the baby wasn't quite ours and we weren't prepared to look after it (as in we didn't have any equipment, feed etc, not that we didn't want to!) This sparked a whole rush a emotions, such as "I want children, now" and "what if we leave it too late to try and find the endo causes more damage and we can't have children?" and "I'm already feeling so ill now, how will my body cope with being pregnant?" and "what if this is all pointless worrying, what if we already can't have children?"... and so on and so forth. I began to get really depressed about how my lifelong dream of having children was becoming a nightmare - why should something so wonderful become a decision that has to be made based more on the best time healthwise and whether we have enough finances, rather than that we actually want children? Why does endo (and all those other factors that affect people's lives) have to screw things up?

As the weeks went on I got more and more exhausted. My immune system is low due to exhaustion and fatigue (I cannot count the times I have fallen asleep on the bus to work because I am so tired). I am working full-time, commuting which puts my days up to 12 hours out of the house and I am angry that I am doing something any healthy person would find hard, whilst trying to battle feeling ill all at the same time. When did society get so messed up that my generation is worse off than the one before? Why is no choice hidden behind a so-called "free-choice"... no woman really has a choice whether to work or not, it's not that easy. Most women have to work just to survive, and those who can come out of work have to make many sacrifices just to do so... whatever happened to family values (and by that I mean simply being able to put the family first, not having to).

All this was happening whilst a cold caught hold of me... a cold that just will not go away, dragging at my very little energy until I have none left and feel like I just cannot go on any longer. I fear for what damage I could do by pushing myself so far beyond my limits, yet I have no choice when I have to work just to pay the rent. We have no choice, Tim and I, we have to fight on. But what happens when you just cannot fight any longer?

We are left with dying hopes that our appointment with the gynaecologist tomorrow may come up with some solutions for us. I cannot take feeling this low any longer, and I cannot take knowing the adverse effects my mood has on Tim. We are a young couple and life should be fun, not a struggle every day. My manager asked me in my performance review where I saw myself heading and what aspirations I had for the future... I've been told a few times I'm not ambitious enough, but you know what, my greatest ambitions are to be healthy and to have a family, what is wrong with that? Why do we have such a focus on careers and achievements and "having it all"... whatever happened to just being happy?

I know this feeling is, in the big scheme of things, only momentary and that things will get better, but it becomes harder and harder to hold on to that hope when each day just drags us down that little bit further. I grasp desperately at solutions, but none of them work and the guilt that I feel for putting so much pressure on Tim and myself to make our lives easier is unfair to us both. Sometimes I wish we just had a fairy godmother who could come and wave her wand and make everything better... please think of us tomorrow as we head to the hospital for our appointment, for the gynaecologist is our one hope of finding a solution the root of this whole mess - the endo!

Life's too short

A very dear friend of mine died last week. She was still very young, with a teenage son, and leaves behind her many people saddened by the loss.

Yet every single one of those people are so thankful to have crossed paths with her and been blessed with the beautiful friendship she was always so ready and willing to offer. Despite being in unimaginable pain at times, she always managed to reach out a hand of love and comfort to others, no matter who they were or how they had met, and she was a true inspiration to many.

Indeed, when I held a "writer's group" a couple of years back to encourage others to find the joy in writing, she was so overwhelmed and overjoyed by the freedom she found in realising that every writer has their own "ingredients" and makes their own "recipes"... one person may make a fantastic carrot cake but struggle with a chicken curry, whilst two people may make chocolate brownies and each have different people enjoy theirs best, despite them being so similar. She was a real inspiration to me as I led this group and I cannot tell you how beautiful some of the things she wrote were.

I only ever got to meet her once in person, as we met and kept in touch online for the most part. But that one weekend I spent in her company was so wonderful - I don't think I've ever laughed so hard, nor enjoyed such a "lazy" weekend. Spiritually she was a wonder, and inspired me in that way too: the videos she posted online and the pictures she created were astounding, so full of love and light.

Amazingly I didn't cry when I found out she had passed, despite having cried so desperately every day for about a week previously. In fact the day she died was the first day I didn't cry, which may seem strange to you, but to me it makes perfect sense... she was so full of love, the inspiration I felt when thinking back upon her life filled me with a quiet peace rather than sadness. Of course I was sad, don't get me wrong, but I was filled with love for her and what she meant to so many people.

I will miss her terribly, especially as I had wanted to go back and spend another weekend with her and invited her to our wedding so that she could meet Tim as well, but I know she will be with us in spirit. Even now she is inspiring me, as I realise that life really is too short to spend worrying... life is for living and we should never forget that, for she never did!!

My previous blog was called "Dream of Living"... seeing that title every time I logged on reminded me to keep hold of my dreams. I lost that sight for some time and my dreams began to be shunned for all manner of "responsibilities" and things... but now I feel it is time to reclaim them and really strive to fulfil them all.

Darling Josie, you were an inspiration to me throughout our friendship and I thank you for inspiring me still. I do not know what way my dreams will take me, but I know that I am now ready to grab hold and live the dream, right here, right now.

Writing the pain - a new project

This week has been hell for me. My whole world seemed to crumble as my emotions got the better of me. Every so often this happens. I can be riding on top of the world one day and the next *WHAM* there I am, completely inconsolable. Initially I thought I was going crazy, but over the years I have noticed a pattern - hormones! Just recently this is what happened, my hormones got the better of me and nothing could stop me from crying. It was at this point, in his desperation to "fix" it, Tim came up with the idea that I should write. So I did.

Writing has always been incredibly therapeutic for me, but this past year I seem to have fallen out of the habit. When I look back I realise that the times in my life when I was most at peace were also the times in my life when I wrote the most.

I am very lucky in that writing comes natural to me. I'm even luckier in that, on the whole, people enjoy reading what I write. (Either that, or they just don't like to say otherwise!!) I've also noticed that the one thing that people always say to me is that they enjoyed the "honesty" of my words, the depths of emotion and the fact I do not hold back. With this in mind I have decided to try a new venture, one which I hope will not only benefit me but also others...

My venture is, to write about life with Endometriosis. I am hoping that what I write will not only be comforting and inspiring to other sufferers but also informational to others and maybe even touch them through common ground, such as similar desires for life and the strength to carry on through the darkest times. Perhaps this is a big task, perhaps it will only serve me... but I hope not!

With this in mind, I ask any of you who read this, to play it forward and pass on the word about this project. I will try and set up a unique page for my "Endo posts" and a link in the sidebar (with icon) that may be posted elsewhere. I would also like to encourage others to try and write/create regarding their life. Endometriosis is an unknown condition to many, and it why so many of us suffer when no-one understands. This could be said of many things in life, I know, but this is the one I struggle with... and writing what you know is the way to move others.

So without further ado, here is my first contribution (written on the bus home last night... yes I write anywhere and everywhere!!)


A Lover Gone Bad

Do you know what it's like to be me,
do you really understand?
Do you have any idea
what hell I live through, every day?
Well, do you?

Anger and fear are friends of mine -
you may recognise them, here by my side
They've visited you when I've come to call,
you thought I was just bein cruel,
didn't you?

Pain is a lover I take to bed,
he comes and goes as he pleases...
have you ever known the hurt of a lover gone bad,
never knowing when he'll return,
or when he'll beat you again?
Have you?

Perhaps I'm too harsh, you do try to help
and I know that you care for me too.
But please, do not tell me "It's not so bad"
or worse, that you understand
unless it really is true.


I'm sure that this may sound very harsh to some, but as always I write from the heart. I know I am loved, and so many people try to help, but so often the overwhelming feeling of having a condition like Endometriosis is being completely and utterly alone. I hope that this poem will comfort those who know that pain only too well, and maybe help to explain to those who don't just what it is like.

Wishing you all a lovely weekend
Amanda

Frozen by fear

The last couple of weeks something BIG has come into my thoughts. This something BIG is an aspect of life I have been looking forward to since a very young age (I'd say I became aware of it when I was about 9). It is something I trusted I would get when I got older, something I wanted so much that it directed my career and life choices. It is something I never thought would be a hard decision to make once I reached a certain age... but here I am and the decision is so hard!

When you're little you never worry about money, health and all those other factors that come in to major life choices. Heck, even as short a time back as 2 years when I chose to move to Cambridge to live with Tim I didn't think about these things... and life got tough! The last two years have been so trying for us, but so special in so many ways (I know just how deep our love is for each other now). However the troubles we've had financially and the difficulties with my health have made me rethink so many things, and often through fear.

I now feel completely paralysed from the fear of what "may" happen. This is nothing new to me as I was very timid as a child and wanted to stay in my safe little box forever. Once I learnt to push my boundaries I decided that however tough it may get, it was all worth it. But now there is not just myself to think about, but others too. How will my decisions affect those in my life. These are big decisions and I can't make them just for me.

Yet there is a part of me that is aching so much for the thing I have wanted for so many years that I can't bear it. I want to say "stuff it" and just go for my dream. This isn't helped by the fact that I feel fearful that there may be problems ahead due to my health and that also my job may not be very secure due to the current climate. There are far too many variables for me to worry about and I wish I could just shut the negatives out long enough to listen to the real positives.

That is why I am going to see a hypnotherapist this weekend. I have wanted to try this for a couple of years, knowing how fear has directed my life from about the age of 9 as well (weird, huh) and that however much logic I put to the fears they still grab hold of me and shake sometimes. I am fed up of living in fear and want to live for now. I must say, seeing the film "UP" the other day really brought this home... if I let circumstance stop me from having my dream, I may live my whole life never knowing it. And although I will experience other amazing things, this one dream is so important I do not want to forsake it.

Until then, my thoughts continue to be occupied (or plagued) by the decision that lies ahead...

Long time no blog...

Ok, I think maybe changing my old blog to a new joint blog was a bit of a let down... I felt too pressurised to find something "joint" to talk about, rather than just writing about whatever came into my head as I did on the old one and Tim, well Tim just seemed to forget all about it - bless!

So what's new, you ask! Well...

1. My parents' house is still without a roof thanks to the insurance company holding up the rebuild after the fire. I went up to Lincoln to see them last week and saw both the house and the damage, plus their temporary accommodations - both very strange to get used to. It's bizarre walking through the home you grew up in and seeing it in such a damaged way and reminds me just how lucky my family were that it happened in the early evening rather than at night when the fumes would have consumed them - so grateful!!

2. I've been busy making things for both Christmas and the new baby (our nephew-to-be) - lots of fun but also very hard to fit in around the long working days. I also wrote and painted a poem for a colleague's retirement party, which made me remember how much I love writing and making things.

3. Tim's car failed it's MOT (well it was 16 years old!!) so we now have almost exactly the same car, only now it is white instead of dark blue and 3 years younger - very hard to get used to the "same, same but different" feel of it.

4. The neighbourhood cat that comes in to have cuddles and kisses with us (but never really wants to eat anything we give her!) almost got our hamster the other day *gasp* - I ran upstairs after thinking she'd gone quiet (I was busying crocheting a bootee at the time) and she shot across the room from the cage to the cupboard - naughty Kitty!! The ext day the hamster (who thinks he's a lemming) leapt off the sofa and ran so fast I didn't know where he had gone and it took us 10 minutes of frantic searching to find him under the stairs behind the shoe rack... panic over!

5. The rest of my time has been taken up by worrying: how will we ever pay off the last bit of debt, save up for a wedding, have enough money to live and have kids, will my health suffer when we decide to have kids and I take the coil out and the endo has free reign, will I have to work full-time just to afford to have kids when I'd much rather stay home with them, should Tim really have to support me though... etc etc etc... boy I am and always have been one of the world's worst (or greatest) worriers. It does me no good, however, and I am currently trying to trust in "the plan" and give up my worries to God (or fate or whatever you like to call it, or not, whichever the case may be. Quite frankly I don't know who I think is in charge of "the plan" but it certainly isn't me and for once that makes me happy!)

So yeah, that's about where we're at. Things at work are *ahem* interesting... we've moved, so many people are complaining about this and that, the recession is biting butts etc, same thing as everywhere and it's tiring as anything... but my colleagues are wonderful, and I have a job ... so who can complain?

Anyway better go, have to go to work now and will miss my bus if I don't run soon
Have a wonderful day, all xx

Weddings

Ok I have been a bad blogger... I have left this poor new blog alone for far too long. But how can a girl think of blogging when all her online time is spent researching dresses, colour themes and all other wonderful wedding planning?? Since T popped the big question, my mind has been occupied with working out what I want, who I want to be there and how the day might go - poor old boy! My dad mentioned he had unleashed a monster and that our first dance should be Monster by The Automatic (thanks Dad). But then I thought, why shouldn't I blog about this, seen as though this blog is about our life together... what bigger part of our lives could there be than marriage (well of our lives so far, anyway)? So without further ado I shall leave you with some images of my current inspiration - enjoy...

Roma - beautiful, romantic Roma

We recently went to Rome for one of my best friend's wedding - it began at 4.30, then after the ceremony and a few drinks we headed to the beach for sunset photos.. how romantic!

I have never, ever eaten so much in my entire life as we ate at the wedding, let alone in Rome itself... the Italians sure love their food, and why not when it tastes sooooo good!

We spent the rest of our time there running round, trying to see as much as possible, which was

a LOT!! You can tell just how hot it was by hot tired I look in most of the photos...

We saw the Vatican...

the baths at Caracalla...

the Colosseum...

the palatine and house of Augustus...

the Roman forums...

and so much more. We even saw lots of TIM...

TIM was everywhere...

But I liked my Tim the best... especially when he proposed...

of course I said YES!!

Now I just have to save up some money and decide what kind of wedding I actually want (now that it is real and not a dream it's quite hard to decide... I hope it will be as beautiful as my friend's wedding!!)

We can't have it on a beach...

But it will be romantic... how could it not after such a romantic engagement?

NB: more photos and tales will follow, I promise, when I manage to get them uploaded